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An Akron mother’s search for answers after her daughter’s rare disease diagnosis

Legaci was two months old when her mother noticed something strange — and frightening. Her eyes sometimes turned inward. Later, they began rolling upward and appeared to get stuck. At first, Akron resident Destiny Moore, a first-time mother, thought the unusual eye movements were part of normal newborn development. But her concerns grew three months later, as the episodes continued and Legaci struggled to reach milestones such as holding her head up, her concerns grew.

Akron’s community calendar

Looking for things to do in Akron? Signal Akron’s events calendar is your go-to guide for what’s happening across the city each week. From family-friendly festivals and outdoor concerts to art exhibits, food truck rallies, and neighborhood block parties, we’ve gathered events that showcase the energy and creativity of our community.

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